Understanding the Disease

Cancer of unknown primary

One of the most common yet least understood cancers — a disease defined by what we don't know.

Disease Overview

A cancer with no known starting point

Cancer of unknown primary (CUP) is a diagnosis given when cancer has spread (metastasised) but the original site where it began — the primary — cannot be identified, even after extensive investigation.

Unlike most cancers, which are named and treated based on where they start (breast, lung, colon), CUP is defined by the absence of that information. This makes it an outlier in modern oncology, where treatment strategies are built around tissue-of-origin.

CUP accounts for 1–3% of all cancer diagnoses, making it one of the ten most common cancers. Yet it receives a fraction of the research attention and funding of far rarer diseases.

CUP at a glance

1-3%
of all cancer diagnoses worldwide are classified as CUP
~15k
new cases diagnosed each year in the UK alone
6-9m
median overall survival with current standard-of-care treatment
68%
of CUP patients have no actionable molecular target (CUPISCO, Lancet 2024)
0
dedicated therapeutic companies with CUP as their lead indication
Prognosis
Virtually no progress in improving CUP outcomes has been made over the past several decades

Standard-of-care remains platinum-based chemotherapy — an approach that has not meaningfully changed in over twenty years. The primary focus has been on improving tissue-of-origin identification, with the hope that site-specific therapy will improve survival. But the lack of conclusive evidence to support this approach has reignited debate about whether identifying the primary is even the right strategy.

Current Approaches

The therapeutic landscape

Efforts to address CUP have focused on diagnosis rather than treatment. Here is the current state of the field.

Diagnostics

Tissue-of-origin profiling

Companies like Veracyte and Foundation Medicine offer genomic profiling to classify CUP patients so they can be funnelled into existing site-specific treatment pathways. These are diagnostic plays — they don't develop drugs for CUP itself.

Clinical Trial

CUPISCO (Roche)

The most significant clinical effort to date — a randomised trial evaluating molecularly-guided therapy in CUP patients with actionable mutations. Results showed benefit for ~32% of patients, but explicitly does not address the ~68% without targetable alterations.

Academic

Academic research groups

Groups at The Christie (Manchester) and Sarah Cannon Research Institute have run CUP-focused clinical studies. These are academic research programmes — important work, but not company-level drug development efforts.

The Gap

No dedicated therapeutics

There is no biotech or pharmaceutical company anywhere in the world with CUP as its primary disease focus or lead therapeutic indication. This is the white space Phantom Therapeutics was built to fill.

These patients deserve
a new approach

Phantom Therapeutics is building a platform designed for the patients the current paradigm leaves behind.

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